Collaboration for Outcomes using Social Media in Oncology (COSMO)

Providence, RI US
September 18, 2024 to September 19, 2024

The Collaboration for Outcomes with Social Media in Oncology (COSMO) has organized the second Conference on Social Media in Oncology

 
More and more people struggle finding online health information, especially patients with cancer. While it can improve health outcomes, patients find it hard to tell reliable info from unreliable. Healthcare pros are essential in fighting cancer misinformation online.
 
Highlights 
 
  • Using Social Media for Research 
  • Create Meaningful Engagement with Advocates, Physicians and Reputable Sources of Information 
  • Exploring the Role of the Digital Opinion Leader 
  • Industry Relations, Partnership and Transparency 
  • Physicians, Patient Advocates, Platform Providers, Health Information Providers 

The availability of information online and through social media has changed how patients engage with each other and their medical teams. According to Rutten and colleagues, nearly 70% report that their initial health of medical information source is the internet1. For people diagnosed with and living beyond cancer, the proportion using the internet as a source of information ranges from 60 to 80%2. Indeed, in oncology, the “rapid diffusion and adoption of social media have created a new frontier in cancer communication”3.

 
While patient access to online cancer-specific information has skyrocketed, judgment over what is reliable and what is not continues to be a significant issue. In this area of uncertainty, trust in health care professionals remains stable, with 94% of Americans trusting clinicians compared with 64% who trust what is found on the Internet4. These data suggest that clinicians remain not only relevant but important sources of interpretation for health information, including what is found online, especially with mounting concerns over health misinformation online
 

Online health information can potentially improve health outcomes, shared decision-making, choice, quality of life, adherence and reduce suffering and health care costs5. Yet, patients struggle with discerning what information is accurate, trustworthy, and reliable. As Grimes pointed out in a 2022 commentary, while cancer misinformation (e.g., false promises and claims not backed by data) is not a phenomenon borne out of social media, the rapidity and reach afforded through social media is6. The reasons for this are varied but include that likelihood of accepting misinformation may be rooted in inherent distrust of conventional medicine, the ever-evolving understanding of cancer biology and the emergence of new therapies, and the sheer ubiquity of cancer misinformation, often coupled with anecdotes to support them6. These data highlight the ongoing threat that misinformation places on people interested in, diagnosed with, and living after cancer face when utilizing the internet, including social media.

COSMO has worked to provide a roadmap on how best to engage the individual physician and b) the professional community. Our overarching mission has been to encourage stronger and more diverse social media participation for oncology professionals, to define the metrics of engagement in a way that demonstrates value to all stakeholders (including those impacted by cancer and the public at large) and to provide a venue for ongoing social media research in oncology.

 

Target Audience

This conference is available to the oncology professional community at large; our target audience is broad and includes both academic and community-based oncology professionals, inclusive of attending physicians, oncology trainees, nurses, research personnel, and advance practice providers.

Learning Objectives

  • Identify opportunities and challenges to engagement by different social media platforms as it relates to professional development, bidirectional communication, and sharing of research
  • Better understand the research areas under investigation within oncology as it relates to social media
  • Distinguish between digital opinion leaders from key opinion leaders or from medical influencers and to better identify how DOLs can collaborate on social media on issues related to and about oncology

FUNDING for this meeting has been provided by: 

  • American Cancer Society 

 

 

Additional Information

AttachmentSize
PDF icon COSMOflyer.pdf2.56 MB
Course summary
Available credit: 
  • 5.00 AMA PRA Category 1 Credit™
    The Warren Alpert Medical School of Brown University is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
  • 5.00 ANCC
    This continuing nursing education activity was approved by the Northeast Multistate Division, an accredited provider by the American Nurses Credentialing Center’s Commission on Accreditation.
  • 5.00 Attendance
    Participants will receive a Certificate of Attendance stating this program is designated for AMA PRA Category 1 Credit™. This credit is accepted by the AAPA and AANP.
Course opens: 
07/01/2024
Course expires: 
09/19/2024
Event starts: 
09/18/2024 - 7:00am EDT
Event ends: 
09/19/2024 - 4:04pm EDT
Cost:
$0.00
Rating: 
0
 Day 1 
  
 Wednesday 9/18/2024 
  
TimeWelcome (Eleonora Teplinsky and Martina Murphy)
  
 Intro to COSMO (Don Dizon)
  
TimeBreakout Sessions
  
 Room One: Medical Communication (Education, Peer to Peer Engagement, Preferred 
 Social Media Platforms) 
 Moderator: Karine Tawagi, University of Illinois Chicago
  
 Learning objectives:
 1. To better understand how social media use in oncology has evolved since 2019
 2. To discuss the pros and the cons of various platforms when used for professional purposes
 3. To discuss the delivery of educational content on social media and its challenges
 Room Two: Community Building & Stakeholder Engagement  
 Moderator: Roberta Lombardi, Infinite Strength
  
 Learning objectives:
  
 1. To define engagement as it relates to specific platforms
 2. To define endpoints of engagement that are both measurable and are potentially actionable
 3. To assess safety and to combat misinformation related to cancer on social media platforms
  
Time0 Group Discussion re: Breakouts (Eleonora Teplinsky and Martina Murphy)
  
1800-1900 Welcome Reception 
  
1900-2100Faculty Dinner 
  
 Day 2
  
 Thursday 9/19/2024
  
0700-0800Breakfast and Registration
  
0800-0815Welcome and Introductory Remarks (E. Teplinsky and M. Murphy)
 General Session #1: “Building an Oncology Community Through Social Media” 
  
 This session will focus on building the oncology community using social media, where we were in 2019 and how it looks today. We will focus on engagement on public platforms and how we can collectively speak in unison for the advancement of oncology.
  
0815-0900 Roundtable One: Engaging with Patient Communities on Social Media & Reaching a Broader Audience (Moderator: Amy Comander, MGH) 
 Panel: Anne Marie Mercurio (SWOG Patient Advocate), Mark Lewis (Intermountain Health), Maimah Karmo (TigerLily), Rachna Schroff (University of Arizona)
  
 Learning objectives:
 1. To discuss the various characterizations of patient advocacy.
 2. To discuss engagement between oncology professionals, patients, and advocates on various social media platforms.
 3. To define questions that can be approached using social media in oncology and the methods to answer them.
  
0905-0925 Using Social Media to Support Diversity, Equity & Inclusion (DEI) in Oncology (Narjust Duma, DFCI)
  
 Learning objectives:
 1. To learn about social media movements to advance equity.
 2. To discuss challenges on using social media aimed at reaching underrepresented populations.
 3. To learn about efforts using social media to address equity in clinical trials.
  
0930-1025Roundtable Two: Social Media as a Venue for Networking and Professional Support in Oncology – How I Find My Tribe on Social Media (Moderator: Ishwaria Subbiah, Sarah Cannon)
 Panel: Maryam Lustberg (Yale), Molly Barry (Vermont), Scott Moedler (Rutgers), Mike Fisch (MDACC), Emily Drake (Patient advocate)
  
 Learning objectives:
 1. To discuss burnout in oncology and the role of social media
 2. To discuss social media and its role in academic advancement
 3. To characterize institutional and industrial challenges in building a social media presence. 
  
1025-1040BREAK
  
 General Session #2: Social Media Clinical Research
 This session will focus on NIH- and other supported research in social media and oncology. Moderator: Wen-Ying Sylvia Chou, PhD, MPH (NIH Health Communication and Informatics Research Branch)
  
1040-1105Dissemination of a Breast Reconstruction Decision Tool through Social Media and Online Communities (Clara Lee, Univ North Carolina at Chapel Hill)
  
 Learning objectives:
 1. To learn more about the rationale for the R01 looking at a breast reconstruction decision tool.
 2. To discuss the role social media will play in the implementation of this tool.
 3. To discuss metrics of engagement specific to this project.
  
1110-1135Cancer misinformation on social media and its correction (Stacey Loeb, MD, NYU)
  
 Learning objectives:
 1. To characterize misinformation in oncology
 2. To define the extent of misinformation on various platforms.
 3. To describe the role of oncology professionals in addressing misinformation.
  
1140-1225Roundtable Three: Funding Social Media-Based Research: Tips and Challenges (Moderator: Dr. Chou) 
  
 Panel: Jeremy Warner (Brown), Clara Lee (UNC), Stacey Loeb (NYU)
  
 Learning objectives:
 1. To characterize current RFAs available at NCI and NIH
 2. To discuss challenges in securing funding for social media research.
 3. To discuss team- and stakeholder- involvement in social media research
  
  
1230-1315LUNCH
  
 General Session 3: Objectives and goals for the individual’s professional use of social media in oncology: The (r)evolution of the Digital Opinion Leader
  
 This session will focus on participants’ social media goals, including how to get more involved in social media-based research in oncology and how to grow on social media, including a talk on digital opinion leaders. The goal is to highlight how social media can serve the individual (whether through advocacy, networking, building a private practice, research opportunities etc.).  
  
1315-1345 KEYNOTE Speaker: Cancer and Covid-19 Consortium (CCC19)- Collaborative research in oncology (Jeremy Warner, Brown)
  
 Learning objectives:
 1. To learn more about the origins and evolution of CCC19
 2. To discuss achievements and key findings from the CCC19
 3. To learn about the future directions of CCC19 “post” pandemic.
  
1350-1435 Roundtable Four:: Bidirectionality of Social Media: Efforts and Outcomes (Moderator: Shikha Jain, University of Illinois)
  
 Panel: Jonathan Sommers (Digital Health Networks), Steve Alperin (SurvivorNet), Gil Morgan (OncoAlert)
  
 Learning objectives:
 1. To discuss bidirectionality: its definition and how it differs across platforms.
 2. To discuss the importance of bidirectionality in engagement.
 3. To discuss lessons learned from bidirectional activities undertaken on social media.
  
1435-1450 BREAK
  
1450-1510The Digital Opinion Leader & Ethics of Engagement: Disclosure, Partnerships, and Authenticity (Eleonora Teplinsky)
  
 Learning objectives:
 1. To discuss the concept of the Digital Opinion Leader
 2. To characterize the challenges in DOL engagement.
 3. To discuss recent efforts to help address challenges in DOL and industry collaboration.
  
1515-1600Roundtable Five: The Digital Opinion Leader: Defining It and Collaborating Challenges Moderator: Martina Murphy (Univ Florida at Gainesville)
 Panel: Stephanie Graff (Brown), Wanda Escobar (Janssen), Nafeez Zawahir (RazorFish, NYC)
  
 Learning objectives: 
  
 1. To discuss the COSMO approach to DOLs
 2. To identify important issues about DOL collaboration from the industry perspective
 3. To discuss the role of third parties in DOL engagement.
  
1600-1615Conference Summary & Wrap Up 
Providence Marriot Downtown
1 Orms Street
Providence, RI 02904
United States

 

 

Co-Chairs
Martina Murphy, MD (Co-Chair)
Associate Professor of Medicine, UF College of Medicine
Medical Director, UFHCC Communication Strategies and Digital Innovation
Assistant Director, UFHCC Clinical Research Education and Professional Development
Program Director, UF Adult Hematology/Oncology Fellowship Program
 
Eleonora Teplinsky, MD (Co-Chair)
Clinical Assistant Professor of Medicine, Icahn School of Medicine of Mount Sinai 
Head, Breast and Gynecologic Medical Oncology, Valley Mount-Sinai Comprehensive Cancer Care. Valley Health System 
 
Presenters
Steve Alperin
CEO, Founder
SurvivorNet
https://www.survivornet.com/about-us/
 
Molly Barry, MD
Medical Oncologist
Assistant Professor
University of Vermont Medical Center
Burlington, VT
 
Wen-Ying Sylvia Chou, PhD, MPH 
Wen-Ying Sylvia Chou, PhD, MPH
Program Director, Health Communication and Informatics Research Branch (HCIRB), Behavioral Research Program (BRP) 
National Cancer Institute
Washington, DC
Xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
 
Amy Comander, MD
Medical Director, Mass General Cancer Center-Waltham
Director, Breast Oncology Program at Newton-Wellesley Hospital
Director, Lifestyle Medicine
Boston, MA
 
Don S Dizon, MD, FACP, FASCO
Director of the Pelvic Malignancies Program at Lifespan Cancer Institute
Director of Medical Oncology at Rhode Island Hospital
Professor of Medicine and Professor of Surgery, Brown University
Vice Chair, DEI and Professional Integrity, SWOG Cancer Research Network
Providence, RI
 
Emily Drake 
Cancer researcher.
Co-founder of #AYACSM
Adolescent & Young Adult Cancer Advocate.
 
Michael J. Fisch, MD, MPH, FACP, FAAHPM, FASCO
Senior National Medical Director, Department of Oncology and Genetics, AIM Specialty Health Inc, Chicago, IL
Clinical Professor, Department of General Oncology, Division of Cancer Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX
 
Narjust Florez, MD
Assistant Professor of Medicine
Harvard Medical School
Associate Director of Cancer Care Equity
Dana-Farber Brigham Cancer Center
 
Stephanie L. Graff, FACP, MD, FASCO
Director of Breast Oncology, Lifespan Cancer Institute
Providence, RI
 
Shikha Jain, MD, FACP
Assistant professor of Medicine
Director of Communication Strategies in Medicine
University of Illinois College of Medicine
Associate Director of Oncology Communication & Digital Innovation
University of Illinois Cancer Center
Chicago, IL
 
Maimah Karmo
Founder and CEO
Tigerlilly Foundation
xxxxxxxxxxxxxxxxxx
 
Mark Lewis, MD
Intermountain Health
 
Stacy Loeb, MD
Professor, Department of Urology at NYU Grossman School of Medicine 
Professor, Department of Population Health at NYU Grossman School of Medicine 
NYU Langone Health
 
Roberta Lombardi 
Infinite Strength
 
Maryam Lustberg, MD, MPH
Associate Professor of Internal Medicine
Director, Center for Breast Cancer
Chief, Breast Medical Oncology
New Haven, CT
https://medicine.yale.edu/profile/maryam-lustberg/
 
Anne Marie Mercurio
SWOG Patient Advocate
 
Scott Moerdler, MD
Program Director, Pediatric Hematology/Oncology Fellowship
Pediatric Hematologist/Oncologist
Rutgers Cancer Institute of New Jersey
New Brunswick, NJ
 
Gil Morgan, MD
Director
OncoAlert
Xxxxxxxxxxxxxxxxxxxxxx
 
Rachna T Shroff, MD, MS, FASCO
Interim Clinical Affairs Director, Cancer Center
Associate Director of Clinical Investigations, Cancer Center
Associate Dean, Clinical and Translational Research
Chief, Division of Hematology/Oncology
Professor, College of Medicine
The University of Arizona
Cancer Center of Arizona
 
Jonathan Sommers
Solace
 
Karine Tawagi, MD
Assistant Professor of Medicine
Department of Medicine, Division of Hematology and Oncology
University of Illinois Chicago
 
Jeremy Lyle Warner, MS, FASCO
Professor of Biostatistics, Professor of Medicine
Brown University
Providence, RI
 
Nafeez Zawahir, MD
Razorfish Health
Chief Medical Officer
New York, NY
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The Warren Alpert Medical School of Brown University is accredited by the ACCME to provide continuing medical education for physicians.

Credit Designation

Physicians: The Warren Alpert Medical School of Brown University designates this live activity for a maximum of 3.0 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Other Healthcare Providers: Participants will receive a Certificate of Attendance stating this program is designated for 3.0 hours AMA PRA Category 1 CreditsTM. Many other disciplines accept AMA PRA Category 1 CreditsTM towards re-licensure or re-certification. Check with your state licensing board to verify.

Available Credit

  • 5.00 AMA PRA Category 1 Credit™
    The Warren Alpert Medical School of Brown University is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
  • 5.00 ANCC
    This continuing nursing education activity was approved by the Northeast Multistate Division, an accredited provider by the American Nurses Credentialing Center’s Commission on Accreditation.
  • 5.00 Attendance
    Participants will receive a Certificate of Attendance stating this program is designated for AMA PRA Category 1 Credit™. This credit is accepted by the AAPA and AANP.

Price

Cost:
$0.00
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Please email the Brown CME Office at CME@Brown.edu at least four weeks before the conference to request reasonable accommodations. 

Cancellation Policy
Cancellations/substitutions must be made in writing to the Brown CME Office at least three weeks before the conference, no later than August 27, 2024. A $50.00 administrative fee will be charged for all refunds (no refunds for “no shows”). There will be no additional charge for substitutions. This conference is subject to change or cancellation

For More Information, Contact Brown Continuing Medical Education
Ph: 401-863-5254 | E: CME@Brown.edu | Website: www.cme.med.brown.edu